Welcome to the Lipedema Link Podcast
Lipedema Link

Lipedema Link

"Lipedema Link" is your essential podcast connecting individuals navigating the challenges of Lipedema. Join host Don-Ellen Ray, a passionate advocate and Lipedema survivor, as she explores this misunderstood condition. Through expert insights, personal stories, and empowering discussions, we provide support, information, and inspiration. Join our community, gain knowledge, and embrace resilience on your Lipedema journey. Tune in for valuable resources, practical tips, and a sense of unity. You are not alone—discover the power of the "Lipedema Link" today!

Recent Episodes

Oct. 22, 2023

Conservative Treatments for Lipedema - Physical Therapist Explains Compression, Exercise, and More!

Get the inside scoop on conservative treatments for lipedema directly from Sandra, a physical therapist and lipedema warrior herself! 💪 In this info-packed episode, Sandra explains manual lymphatic drainage, compression garm…
Sept. 25, 2023

Surviving Young with Stage 1 Lipedema - How One Woman Navigated Diagnosis, Surgery, and Life Over 10 Years

Zahra shares her story of discovering she had Stage 1 Lipedema in her early teens. She details the frustrations of misdiagnosis, finding the right surgeon, insurance battles, weighing surgery vs conservative treatment, her e…
Sept. 11, 2023

From Barely Able to Stand to Crushing CrossFit - How She Conquered Lipedema with Fitness

Pattie shares her incredible journey of overcoming severe mobility issues from lipedema using strategic fitness and exercise. Learn how she went from barely being able to walk to completing triathlons and CrossFit in this mo…
Aug. 26, 2023

🏥 Unlocking Insurance Coverage for Lipedema Surgery: Expert Tips and Strategies 🌟

Struggling to get your lipedema surgery covered? In this jam-packed episode, the top lipedema patient advocate Antonio shares their best tips for navigating health insurance. Learn how to: Put together the STRONGEST pre-auth…
Aug. 14, 2023

Getting Insurance Coverage for Lipedema Surgery :Tips from A Patient Advocate

In this episode of Lipedema Link, host Don-Ellen Ray interviews patient advocate Karie about tips for getting insurance coverage for lipedema surgery. They discuss the history of insurance coverage for lipedema, finding qual…
Aug. 7, 2023

Diets and Supplements for Reducing Lipedema Inflammation with Bonnie Newlin

In this episode of Lipedema Link, dietician Bonnie Newlin joins hosts Don Ellen and Phil to discuss the best anti-inflammatory diets and supplements for reducing lipedema symptoms. Bonnie shares her experience with lipedema …

Recent Blog Posts

Conservative Treatments for Lipedema: A PT's Guide to Compression, Exercise, and More

Conservative Treatments for Lipedema: A PT's Guide to Compression, Exercise, and More Get relief from lipedema symptoms with conservative treatments like compression, MLD, vibration therapy, aquatic exercise and more. PT and lipedema warrior Sandra…

Surviving Young with Stage 1 Lipedema: Zahra’s Journey to Diagnosis and Surgery

Surviving Young with Stage 1 Lipedema: Zahra’s Journey to Diagnosis and Surgery   When Zahra started experiencing disproportionate growth, pain, and swelling in her legs during puberty, she knew something wasn’t right. But like ma…

From Barely Mobile to Crushing CrossFit: How Pattie Conquered Lipedema with Fitness

From Barely Mobile to Crushing CrossFit: How Pattie Conquered Lipedema with Fitness Pattie was an active, athletic person her whole life - until a lipedema diagnosis in her late 30s practically immobilized her. Unable to get answers or relief from …

About the Host

Don-Ellen Ray Profile Photo

Don-Ellen Ray

Host

Don-Ellen Ray, an extraordinary single mother who has charted a path from the corporate world to becoming a beacon of hope and knowledge. Her personal journey through the twists and turns of misdiagnosis led her to the discovery of a life-altering condition: Lipedema.

Don-Ellen's relentless pursuit of answers began when she experienced excruciating leg pain, accompanied by an unsettling transformation in their appearance. Her legs seemed more like stumps, and unexplained bruising dotted her skin. Overwhelmed by chronic fatigue, even the simplest daily tasks became a Herculean effort. It was during her extensive search for answers that she unraveled the enigma of Lipedema.

Driven by the realization that others must be enduring similar struggles, Don-Ellen's vision for this podcast was born. With unwavering determination, she aims to share her own journey while amplifying the stories of countless individuals who have faced misdiagnosis and rare conditions. This platform will serve as an invaluable resource, providing education, information, and much-needed awareness about Lipedema and other misunderstood and rare conditions.

Don-Ellen's mission transcends mere awareness. She seeks to create unity, a space where those walking a similar path can find solace, support, and companionship. Together, we will embark on a transformative journey of information, compassion, and unwavering solidarity.